Slow and Steady

Carson is finally starting to eat like a baby his age should. He is slowly starting to fill out and put on some weight. Last week he was up to 11 pounds 4 ounces. This is still extremely small for his age and he still has 0% body fat and is in the 0 percentile in his weight, but progress is progress! His kidney ultrasound from a few weeks ago came back normal, his barium swallow came back clear, and his heart is pumping as it should. It’s reassuring to get all of this positive feedback from all of the testing, however it still does not give us any answers. We are still trying to figure out what is causing all of our issues. The older Carson gets the more developmentally behind he is becoming, but if he continues eating like he is now he should catch up soon enough.

On a somewhat happier note, Carson got his first pair of hearing aids today. It has been a very bittersweet day. I know that the hearing aids are the first step to being able to hear, but it is going to take some getting used to. I’m terrified about the first time I take him out somewhere and someone looks at him funny because he looks different. It sounds terrible, but yesterday all I could think about was how it was the last day Carson would look  “normal.” Before strangers could not tell that Carson has problems, but now that’s the first thing they will notice. He is now completely vulnerable, and there is nothing I can do about it. It has just been an overwhelming day. A lot of my initial feelings and frustrations were brought to the surface again today. Just like everything else it will just take time to adjust to it. I just have to remind myself that all of this will lead to a better future for Carson. Here are some pictures from today. I may be slightly biased, but I have never seen hearing aids look so good!

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7 thoughts on “Slow and Steady

  1. What a blessing. Look at that little face. He hears your voice. What do you think he is thinking. Do not worry about other people, he is your gift from above he will always be protected.

  2. He looks great!  I am so proud for him to be able to hear his Mommy & Daddy’s voices.    Carol Ann Sauls

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  3. no one could ever look at this sweet boy and think anything but, precious beautiful, angel! And if you do hear something negative please introduce them to his Big Family.

  4. . He is precious. He looks like he has a fancy new MP3 player. With that sweet face nobody will pay much attention and if they do say anything hurtful just notify ‘THE FAMILY’ (as Bonnie said) and we’ll help them understand. He is God’s SPECIAL baby and He will be there for all of you. Trust Him. We love you.

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