Today we met with the geneticist again and Carson had his four month check up. The results for his MRI that was done last week came back normal, so there is nothing wrong with his brain. They also did a test to check his chromosomes and that also came back normal ( he has the right number of chromosomes-46). This is the first good news we have had for a while, but those results do not help to give us an answer. The doctors agree that there is still a problem and now more tests are being done to try and find out what could be causing the problems Carson has. The next step is an EEG, an EKG, an ultrasound of his heart and kidneys, and more testing of his blood and urine. This time they are checking the actual pieces of genetic material inside his chromosomes. One of the biggest concerns we are trying to find a solution for is that Carson has stopped gaining weight. He is in the zero percentile in his weight and even though he is on a high calorie formula we are not seeing improvement. If nothing changes and he continues to stay underweight we will be looking at placing a feeding tube. Please continue to keep our family in your prayers and pray that the doctors will be able to figure all of this out.

5 thoughts on “Update

  1. We are keeping you all in prayer and are keeping baby Carson in prayer. What an encouragement you all are to so many by sharing your testimony. Stay Strong and remember that while this journey is so hard God has big plans for you and Carson and he will do great things as he grows and will be able to share his testimony with others. Sending you all love and hugs and prayers ❤

  2. I am praying for y’all daily. I will continue to ask our sweet Jesus to give the doctors the wisdom and knowledge to help sweet Carson. I love you

  3. I have been exactly where you are right now….lots of tests, waiting on results, worried to death, trying to be strong. So often I was able to find out information and get comfort from talking with people that we’re going through similar situations. I’m praying for you and your sweet family!! Please know that I am here if you need to talk to someone who understands what you’re going through. God bless!!

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